– Two late-breaking presentations focused on SABRIL vision data were presented today at the annual meeting of the American Epilepsy Society (AES). One presentation includes interim results from a prospective, open-label trial of retinal structure and function in adult patients with refractory complex partial seizures (CPS), and the other presents four-year data from Lundbeck’s SABRIL patient registry. 1,2 Because of the risk of permanent vision loss, the U.S. Food and Drug Administration (FDA) requires a Risk Evaluation and Mitigation Strategy (REMS) for SABRIL which includes the ongoing registry.
– The National Alliance on Mental Illness (NAMI) and the National Council for Behavioral Health (National Council), along with Otsuka America Pharmaceutical, Inc. and Lundbeck, today announced the launch of Connect 4 Mental Health (C4MH), a nationwide initiative calling for communities to prioritize serious mental illness. Introduced at a “Community Collaboration Summit” to leaders from both mental health and community-focused organizations nationwide, C4MH aims to take recent national discussions 2,3 about serious mental illness deeper into communities to encourage change where it may have the greatest potential to impact individuals with these conditions and the communities in which they live.
This month, the Epilepsy Foundation and Lundbeck joined together in a nationwide effort to bring information about managing seizures to people living with epilepsy and their families. At the center of the initiative is a new educational infographic created by the Epilepsy Foundation titled “Managing Epilepsy & Seizures: Facts to Help Keep You Safe.” It can be viewed here.
Today, Lundbeck and the Hereditary Disease Foundation announced the launch of the fourth annual Build Hope for HD initiative. The online donation campaign helps generate support for the Casa Hogar Corea de Huntington Amor y Fe (Huntington’s Chorea Home of Love and Faith), a unique Venezuelan clinic serving the families who made possible groundbreaking discoveries in Huntington’s disease (HD) and other genetic diseases. To trigger a donation from Lundbeck to help keep this vital clinic open, visit www.BuildHopeforHD.com or www.hdfoundation.org and click on the campaign icon before the end of the year. For every click, Lundbeck will donate $15 to the clinic, up to $25,000.
– Lundbeck today announced the launch of LGS Together, an online initiative for people impacted by epilepsy, including those affected by Lennox-Gastaut syndrome (LGS). LGS Together will help parents and family members share their personal experiences and find strength for the journey of caring for someone with a challenging seizure disorder like LGS. The LGS Together launch coincides with Epilepsy Awareness Month in November and LGS Awareness Day on Nov. 1.